{"id":12126,"date":"2022-07-31T11:17:25","date_gmt":"2022-07-31T11:17:25","guid":{"rendered":"https:\/\/portblue.wp1.rwdesarrollos.es\/?p=12126"},"modified":"2022-08-09T10:39:36","modified_gmt":"2022-08-09T10:39:36","slug":"we-will-battle-to-the-end-of-our-days-to-provide-our-children-with-the-best-possible-quality-of-life-says-the-president-of-arka%ef%bf%bc","status":"publish","type":"post","link":"https:\/\/portblue.wp1.rwdesarrollos.es\/en\/blog\/we-will-battle-to-the-end-of-our-days-to-provide-our-children-with-the-best-possible-quality-of-life-says-the-president-of-arka%ef%bf%bc\/","title":{"rendered":"&#8220;We will battle to the end of our days to provide our children with the best possible quality of life&#8221; says the President of ARKA"},"content":{"rendered":"\n\n\n<div class=\"wp-block-group section section_content section_pd-def-2 pb-none\"><div class=\"wp-block-group__inner-container is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group container dc-content dc-content_thm-3\"><div class=\"wp-block-group__inner-container is-layout-flow wp-block-group-is-layout-flow\">\n\n\n<h2 class=\"has-text-align-center wp-block-heading\">&#8220;We will battle to the end of our days to provide our children with the best possible quality of life&#8221;<\/h2>\n\n\n\n<h3 class=\"has-text-align-center wp-block-heading\">Interview with \u00c1ngela Fern\u00e1ndez, president of ARKA Tapones Solidarios<\/h3>\n\n\n<div class=\"wp-block-post-date\"><time datetime=\"2022-07-31T11:17:25+02:00\">31 Jul 2022<\/time><\/div>\n\n<div class=\"taxonomy-category wp-block-post-terms\"><a href=\"https:\/\/portblue.wp1.rwdesarrollos.es\/en\/blog\/category\/mallorca\/\" rel=\"tag\">Mallorca<\/a><\/div>\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">Sometimes life presents us with unexpected surprises that we have to face with love, willpower and a lot of courage. That is the case with the families that form part of ARKA Tapones Solidarios, a non-profit organisation in Mallorca created by the mothers of children suffering with cerebral palsy.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">PortBlue Hotel Group has had a very close relationship with the organisation for years thanks to Alejandra Porto, our quality and environment manager, and an ambassador for the partnership and the cause. Alejandra coordinates the collection of plastic lids that can be used to generate financial resources that can improve the quality of life of children and help give visibility to the organisation, to which donations can be made through <a href=\"https:\/\/www.teaming.net\/arkataponessolidarios#:~:text=https%3A\/\/www.teaming.net\/arkataponessolidarios\">ARKA Tapones Solidarios.<\/a><\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1920\" data-id=\"12013\" src=\"https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-scaled.jpg\" alt=\"\" class=\"wp-image-12013\" srcset=\"https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-scaled.jpg 2560w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-300x225.jpg 300w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-1024x768.jpg 1024w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-768x576.jpg 768w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-1536x1152.jpg 1536w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-2048x1536.jpg 2048w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-24x18.jpg 24w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-55x41.jpg 55w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-arka-56x42.jpg 56w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n<\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">To learn more about ARKA and its needs, we spoke with its President, \u00c1ngela Fern\u00e1ndez.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>How did Arka get started?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">It started as we were looking for a way to be able to cover all of the needs of our children, their treatments, therapies, adaptations and orthopaedic products, among others, which are not fully covered by Social Security or are almost covered but require you to put up the money needed in advance, both whether it\u2019s \u20ac250 or \u20ac9,000. For example, the latter amount is needed for a wheelchair with a moulded seat, which Social Security will then pay back within a period of 6 months to two years.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>How many members do you have at the moment?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">We currently have four children, each of them with a different family situation. Alba is the oldest at almost 15 years old, and is cared for by her single mother Teresa, with the help of her sister, Nerea. C\u00e9sar is 12 years old and is also cared for just by his mother Dora, who also takes care of her eldest son with 2 granddaughters. Noah is 8 years old and cared for part time by his mother Marga and occasionally by his father Ismael. Finally Juli\u00e0, my daughter, who I care for myself with the support of my partner Jose. And none of this would be possible without the unconditional help of Xisca Estrany, who acts as secretary and manager of the organisation in her spare time. Xisca is the aunt of Jaume, one of the children who has already died.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>If there are other families living through the same experiences as you, how can they become part of the organisation?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">There are many more families in the same situation as us, some struggling on their own and others who do not have the energy to fight or prefer not to be seen in public. The world of cerebral palsy in children is becoming more and more visible, but that doesn\u2019t mean that it is not still painful to take a walk with your child down the street and have them stared at as if they were a funfair attraction. Not everyone is ready to fight.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>What are the needs you have that are not covered by the authorities?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">From the age of 6, the authorities no longer cover therapy, which has to be paid by families. I guess they believe that kids from the age of 6 are all suddenly cured by magic. The more therapy you want to give your child, the greater the bill at the end of the month. Personally I pay about \u20ac500 a month just for therapy.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Where did you get the idea of collecting plastic lids?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">About 10 years ago, oil was really expensive and recycling plastic became increasingly popular. At that time you could get around \u20ac140 per ton of plastic and there was also a lot of awareness due to the publicity that was given to some children and their suffering.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">However, we have suffered two very significant blows. Firstly, oil became much cheaper and we began to get only around \u20ac70 per ton. And secondly, there was some fraud by families with children who were not seriously affected or who did not even have any illness. They swindled a lot of money and the media coverage it received meant that many people started not to trust us. But that is all a thing of the past, and we continue to fight to meet the needs of our children.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>What do you do with the money you raise?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">As I mentioned, we use the money to cover the children\u2019s therapy or orthopaedic needs. For example, Juli\u00e0&#8217;s wheelchair and its moulded seat cost \u20ac8,300. Social security will cover only \u20ac5,500, and I have to cover the other \u20ac2,800 personally. If you add this to her monthly therapy expenses, it would be impossible for us to get to the end of the month. In this case, the organization will cover those \u20ac2,800.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>How can people help the association?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">With donations or through <a href=\"https:\/\/www.teaming.net\/arkataponessolidarios#:~:text=https%3A\/\/www.teaming.net\/arkataponessolidarios\">Teaming<\/a> (micro-donations), a page where you can just contribute \u20ac1 every month from your account with no additional expenses. This is probably the best option, with each person only having to contribute \u20ac1 per month. But if we can manage to get 4,000 people or more to support us, we would have the expenses for our children paid for life.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>What do you need as a top priority?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">I&#8217;m not going to lie to you, we need money. The kids are getting older and their expenses are growing. The four mothers raise our children alone and often on just one salary which doesn\u2019t go very far. For example, I have to change my vehicle (I have a family car, but it\u2019s not adapted). A van will cost me around \u20ac24,000, and I then have to adapt it by adding a ramp for another \u20ac8,000. And I have to do this on my own, because her father has disappeared from our lives and doesn\u2019t want anything to do with taking care of her. And if we add this to Juli\u00e0&#8217;s monthly expenses, therapy, orthopaedics, food, clothes, the house, etc. we often just don\u2019t have any money and have to turn to the family for help.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Our life is already quite difficult, as every day you get up and have to struggle with inner demons that I would not wish on anyone. I never imagined that being a mother would be like this, and that hurts. Even if you have fully taken it on board, it still hurts you every day. And on top of that you have to add the worries about not having enough money to cover all your child&#8217;s needs, whatever the cost, because you always want the best for them, whatever gives them the best quality of life. And that\u2019s why us mothers will be fighting until the end of our days.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-2 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"878\" data-id=\"12012\" src=\"https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto-1024x878.jpg\" alt=\"Blog PortBlue Hotel Group_Alejandra Porto\" class=\"wp-image-12012\" srcset=\"https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto-1024x878.jpg 1024w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto-300x257.jpg 300w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto-768x658.jpg 768w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto-1536x1317.jpg 1536w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto-24x21.jpg 24w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto-48x41.jpg 48w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto-56x48.jpg 56w, https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portblue-alejandra-porto.jpg 1920w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n<\/div>\n<\/div>\n\n\n\n\n\n<div class=\"wp-block-group text-center mt-4 mt-lg-7\"><div class=\"wp-block-group__inner-container is-layout-flow wp-block-group-is-layout-flow\"><\/div><\/div>\n<\/div><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group section_pd-def-2 section_pt-def-2\"><div class=\"wp-block-group__inner-container is-layout-flow wp-block-group-is-layout-flow\"><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Sometimes life presents us with unexpected surprises that we have to face with love, willpower and a lot of courage. That is the case with the families that form part of ARKA Tapones Solidarios, a non-profit organisation in Mallorca created by the mothers of children suffering with cerebral palsy.<\/p>\n","protected":false},"author":13,"featured_media":12014,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[258],"tags":[264,267,270,281],"class_list":["post-12126","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-mallorca","tag-mallorca","tag-portblue","tag-portblue-hotel-group","tag-solidaridad"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>&quot;We will battle to the end of our days to provide our children with the best possible quality of life&quot; says the President of ARKA - PortBlue Hotels &amp; Resorts<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"&quot;We will battle to the end of our days to provide our children with the best possible quality of life&quot; says the President of ARKA - PortBlue Hotels &amp; Resorts\" \/>\n<meta property=\"og:description\" content=\"Sometimes life presents us with unexpected surprises that we have to face with love, willpower and a lot of courage. That is the case with the families that form part of ARKA Tapones Solidarios, a non-profit organisation in Mallorca created by the mothers of children suffering with cerebral palsy.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/portblue.wp1.rwdesarrollos.es\/en\/blog\/we-will-battle-to-the-end-of-our-days-to-provide-our-children-with-the-best-possible-quality-of-life-says-the-president-of-arka%ef%bf%bc\/\" \/>\n<meta property=\"og:site_name\" content=\"PortBlue Hotels &amp; Resorts\" \/>\n<meta property=\"article:published_time\" content=\"2022-07-31T11:17:25+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-08-09T10:39:36+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/portblue.wp1.rwdesarrollos.es\/wp-content\/uploads\/2022\/07\/portbue-arka-tapones-solidarios-scaled.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"1920\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Marketing Manager\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Marketing Manager\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/portblue.wp1.rwdesarrollos.es\\\/en\\\/blog\\\/we-will-battle-to-the-end-of-our-days-to-provide-our-children-with-the-best-possible-quality-of-life-says-the-president-of-arka%ef%bf%bc\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/portblue.wp1.rwdesarrollos.es\\\/en\\\/blog\\\/we-will-battle-to-the-end-of-our-days-to-provide-our-children-with-the-best-possible-quality-of-life-says-the-president-of-arka%ef%bf%bc\\\/\"},\"author\":{\"name\":\"Marketing Manager\",\"@id\":\"https:\\\/\\\/portblue.wp1.rwdesarrollos.es\\\/en\\\/#\\\/schema\\\/person\\\/aa89658e0222f16ad7a8cfc2891bd445\"},\"headline\":\"&#8220;We will battle to the end of our days to provide our children with the best possible quality of life&#8221; 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